It's funny, but I feel more comfortable writing in the Weebly blog editor on this computer than a normal word processor. It might be because I don't have a normal word processor on the computer...well anyway!
On November 22, 2016, the feast of St. Cecilia the patroness of musicians, our family learned that our new baby on the way was a girl. This was very much a joy to hear because we currently have only one girl and five boys. Slowly working on leveling the ship! Furthermore, my wife and I both figured out her name independently months before we knew she was a girl. Her name: Isabel Thérèse.
Along with that beautiful news, we also got a severe diagnosis for Isabel. The technician could not find all four chambers of her heart. We learned through a later visit with a pediatric cardiologist that Isabel has a congenital heart defect known as hypoplastic left heart syndrome (HLHS). Basically, she only has three chambers of the heart. Without immediate intervention after birth, this condition is fatal.
From that diagnosis, we have learned that we are in the backyard of one of the best hospitals in the country for treating this disease. Treatment is done through three surgeries over the course of three years or so, the first one within a couple of days after birth. Discovering this gave us great hope for Isabel's future.
Even so, her future is not guaranteed. So, we pray and hope. God gave us this little child for a reason, heart defects and all, and God is the good father who gives good gifts. Within this child whom the world could see as defective, my wife and I only see blessing and light. Even to the extreme that she lives only a day, this is an immortal soul who graced the planet and will sing to God in heaven. And for that, I am thankful for His gift of Isabel.
And so, I took to what I do - music. I recorded three songs in celebration of this time in our lives. I will be releasing this shortly and probably unceremoniously. These songs are an extension of my faith and are performed for God. I don't want to make a cent off of it, and I'm not looking for a following. But anyone who wants to hear, feel free and feel free to share: just because this is my expression of faith, does not mean it is unique to me.
The three songs are in a style that is rather new to me. It isn't metal, but I do use heavy guitars from time to time. No drums and plenty of acoustic guitar. Could call it acoustic, but I use electric lead guitar over it. I don't know exactly - its a hodgepodge of stuff, but I think that it works!
I will reveal the three songs when I release the album. Something is telling me that it will be on February 2. We'll see.
I humbly request prayers for Isabel and for all families who are going through situations similar to this. Thank you for taking the time to read the blog :)
About The Blog
This is the news blog of Phrygian Phish. Check out here for news on Phrygian Phish projects like Last Rites, Beyond the Dice, and other Sean Bailey projects.